Migraine Heroes
Susanne smiling in round glasses and a pale green top against a soft green background beside the episode title.
Subscribe onBy subscribing to the Migraine Heroes Podcast on Apple or Spotify, you will receive episodes twice a week with fresh evidence-based insights.

Susanne

55 years old, New Zealand

41 min

Self-reported migraine

At start:

17 days/month

After 4 months:

3 days/month

What changed

Went from unpredictable weekly attacks and living in fear of the next one, to going three-plus weeks without needing prescription medication.

Susanne’s journey with migraine began in her late twenties but intensified in her forties, coinciding with the start of perimenopause.

Despite a demanding career as a general manager and managing a busy household, including six chickens and a beloved black cat, Susanne has faced the challenge of migraine with courage and determination.

In this heartfelt conversation, Susanne shares her experiences from the early days of misdiagnosis and ineffective treatments to finally understanding her condition and finding relief.

She opens up about the emotional and physical toll of migraine, her struggles with medication, and the significant moments that led to her current state of better health.

✨This episode is not just a story of pain, but of hope and healing. Susanne's candid reflections offer valuable insights for anyone struggling with migraine and those supporting them. Discover how her journey through lifestyle changes, and personal growth has shaped her path to relief.

Tune in to hear about Susanne’s transformative journey and the steps she took to reclaim her life from migraine. Whether you're a migraine sufferer or simply interested in learning more, this episode is a must-listen.🎧

00:00
-41:00
Transcript

[00:00]

Welcome to the Migraine Heroes podcast, a podcast where we share real stories from real

[00:07]

people suffering and battling with migraine disease.

[00:12]

In this podcast, we seek to provide support, hope, holistic health, advocacy, and inspiration

[00:19]

for those who suffer from migraine disease.

[00:22]

Hello, Suzanne, thank you so much for being here with me today.

[00:29]

Thank you for having me, Diane, I'm really excited to be here, it's amazing.

[00:33]

Yes, it is amazing.

[00:34]

It is amazing because we've seen each other, actually, we've met each other not so long

[00:38]

ago.

[00:39]

I'm going to have to take, my third of May is when we met and we are the 20th of June.

[00:44]

Oh, I thought it was in April, but okay, yeah, yeah.

[00:47]

Yeah, May 3rd, I have you in my notes.

[00:50]

And so it's been, you know, a bit over six weeks, but barely.

[00:55]

Yeah.

[00:56]

Yeah, I certainly did not expect to see you so fast, especially after 20 years of migraines,

[01:02]

roughly is what I remember.

[01:04]

Yes.

[01:05]

And what we're going to do today is really unusual.

[01:07]

We're going to have Suzanne.

[01:08]

Suzanne is still in program and we're going to talk about her journey and about how it

[01:13]

is to be in program.

[01:15]

So do you want to first get us started with who you are, where you're based, and what

[01:19]

do you do for a living?

[01:22]

My name is Suzanne and I live in Nelson, New Zealand, in beautiful Nelson with a lot of

[01:29]

sunshine hours, very beautiful place.

[01:31]

Originally I'm from Germany and I've lived in New Zealand for the last 23 years, roundabout.

[01:41]

And I've got a pretty full on job.

[01:45]

I'm a general manager looking after a couple of pharmacies for a big corporate organization.

[01:53]

And I have been doing this for the last two years.

[01:56]

And before that, I have managed retirement villages and working with older people for

[02:02]

a long, long time.

[02:03]

That's my background.

[02:04]

And I live here in Nelson with my husband and we have a black cat who is here somewhere.

[02:12]

We have six chickens and we have a nice property that keeps us busy and a house that always

[02:21]

needs a bit of work.

[02:22]

My husband is a carpenter by trade and we're actually in the middle of renovating the place

[02:27]

a little bit.

[02:28]

And yeah, so always stuff to do.

[02:31]

It's nice.

[02:32]

Oh, very good.

[02:33]

Yeah.

[02:34]

And so now you can make sure, what's the name of your cat?

[02:36]

Really, he hasn't got a proper name.

[02:38]

So we call him, we usually call him the German word for a male cat, Carter.

[02:46]

Okay.

[02:47]

Yeah, yeah, yeah, yeah, yeah, yeah.

[02:50]

Almost the name in English, Carter.

[02:52]

Yes.

[02:53]

I've also got a son, he lives in Germany and he went back to Germany to go to university

[03:01]

and then he met his girlfriend there and they just had a baby.

[03:07]

So I'm a grandma too.

[03:08]

Oh, wow.

[03:09]

Wow.

[03:10]

Wow.

[03:11]

So that's very exciting.

[03:12]

Yeah.

[03:13]

Yeah.

[03:14]

Yeah.

[03:15]

Absolutely.

[03:16]

Absolutely.

[03:17]

Always better to mother and to grandmother without a migraine.

[03:18]

We'll talk about that later.

[03:19]

Okay.

[03:20]

Wonderful.

[03:21]

And so do you have eggs from your chickens?

[03:22]

Yeah.

[03:23]

We do get, right now it's winter here in New Zealand when, you know, shortest day coming

[03:27]

up tomorrow.

[03:29]

And so at the moment they're not laying, they're just eating, but they're very happy chickens.

[03:36]

They're allowed to roam in the garden and so they have a really beautiful life and they

[03:41]

will start laying again as the days get longer.

[03:44]

And so at some point in your life, you started to develop migraines.

[03:48]

Can you talk about the first few that you experienced, if you remember them?

[03:51]

I think I had headaches or probably what was migraines the first time, maybe in my late

[03:57]

twenties and, but you know, very occasionally and I didn't know exactly what it was.

[04:05]

It was usually a really bad headache and I didn't really put too much attention into

[04:10]

it because there was no regularity.

[04:13]

I didn't know what they were and I think I managed them just by ignoring them, I guess,

[04:19]

for quite some time until they got more regular in my late thirties and going into my forties.

[04:28]

And I think I became worried in my early forties or with the start of perimenopause maybe when

[04:35]

I look back now, that's when they really ramped up and that's when I went to the doctor and

[04:41]

I remember going to the doctor the first time and saying, I'm getting those headaches.

[04:48]

I thought it had something to do with my teeth and I went to the dentist and he gave me really

[04:54]

strong painkillers and I thought something's wrong with my jaw and I got really worried.

[05:02]

And my doctor, she never mentioned the word migraine or, you know, headache, disease or

[05:07]

anything.

[05:08]

I didn't feel like she was taking this very seriously.

[05:11]

So I kept going back and I felt like, is there something wrong with me?

[05:15]

Why can't somebody tell me what, you know, what this is?

[05:20]

And finally we, you know, somebody called it what it actually is, migraines.

[05:25]

And I started to take really strong medication because the over-the-counter stuff just didn't

[05:31]

do it anymore.

[05:32]

So I started to take Triptans and even with them, I found it hard to manage at times and

[05:39]

I developed a really weird pattern of getting a migraine once a week at least.

[05:44]

And then the pattern was usually getting a really bad day where I, you know, was basically

[05:50]

in bed and couldn't do much, taking medication, getting better the next day and then having

[05:57]

another big bad day the day after.

[05:59]

So it was always a three-day journey and then a few days break and then it kind of started

[06:05]

again.

[06:07]

And so I went to a specialist then, to a neurologist and she was, you know, wanting to give me

[06:13]

preventative medication and I tried that and I couldn't take it, I just had too many

[06:18]

side effects from it.

[06:20]

And I just don't like taking medication because I know every time I take that strong migraine

[06:26]

medication I feel like a zombie and my sleep is totally disturbed and I looked for other

[06:33]

ways and I saw an osteopath and a lady that was specializing in physio for the neck and

[06:40]

my GP on a regular basis and I remember sitting at my GP crying saying, I can't manage this,

[06:48]

I can't be like this, I can't imagine my life being like this.

[06:53]

And at the same time, I tried to work through it, you know, I tried to not bother anybody

[07:00]

and I wouldn't talk about it at work only if it was really, really bad.

[07:05]

And then I would make it so that I just went home a little bit earlier because I have a

[07:09]

bit of a headache.

[07:10]

I found it really hard to talk about it because you can't see it, you can't, you know, there's

[07:16]

nothing bleeding, there's nothing broken, there's nothing visible as such.

[07:21]

It's really hard for people to understand the pain, it is also really hard for my husband

[07:25]

to understand it and I can see him being quite scared of it and right now we're in this limbo,

[07:31]

right, where I didn't have a headache for, I think, it's coming up four weeks, it's amazing.

[07:39]

Every morning he's going like, how's the heat?

[07:42]

And I can feel the worry in him and then the relief when I say, I'm fine.

[07:47]

You know, the effect this has on relationship, on our relationship, not being able to, for

[07:55]

me to say, yes, I can come with you somewhere next weekend because I don't know.

[08:01]

My passion was a little bit like I would get through the week and then it would hit me

[08:05]

on Friday, Saturday morning and before I found you it was really bad, there was no

[08:12]

pattern to it anymore, it just happened, yeah, so, and, you know, I tried to, I was reading

[08:18]

a lot about diet and, you know, I tried to cut out carbs and I love my food.

[08:26]

When I'm having those really bad attacks that I'm, I get really hungry and I want to eat

[08:32]

and I want to have carbs and I just couldn't go on those restrictions.

[08:37]

I wasn't strong enough to actually follow that through.

[08:41]

Physiologically, I have to say it's, it would be really, really hard because women will

[08:46]

have some excesses, they will have some deficiencies and so the craving is also physiological.

[08:52]

It's something that you decide in your head, it's something that happens in your body,

[08:56]

yeah.

[08:57]

You know, being so unwell, I just didn't enjoy life a lot, I don't think and I remember when

[09:04]

I had headache three days, I was always scared that the next day I would get, you know, a

[09:10]

really big migraine or I found it hard to even enjoy those days where I was feeling

[09:15]

really good because I kind of was anticipating that the next attack would come and it's still

[09:21]

a little bit there, you know, that every day I wake up and I'm feeling good and I'm thinking,

[09:27]

this isn't something that might happen, yeah, that's an emotion women talk about a lot,

[09:32]

women have.

[09:33]

Yeah, and I think, you know, I'm totally prepared for another attack or something to happen.

[09:39]

I don't think I'm quite through the journey yet, it doesn't feel like I'm finished and

[09:45]

I'm kind of preparing myself a little bit for it but every time so far in the last two

[09:50]

weeks when I felt that a headache was coming on, I could manage it and I'm so bloody proud

[09:57]

of it.

[09:58]

Yeah, absolutely, that's an amazing sensation, that's an amazing sensation.

[10:04]

So let's talk about that, just before I want to rewind a little bit on relationships, so

[10:10]

you mentioned the relationship with your husband now where he wakes up and tiptoes a question

[10:14]

on how is your head this morning, can you comment on it before, so for the, you know,

[10:20]

the whole time, so the two decades and the last decade that was really intense and then

[10:24]

how was it also with your son, like how much would you actually share or not share to not bother him?

[10:31]

I would actually only share it if it was really bad and I couldn't function.

[10:37]

The really bad pattern basically started when he was an adult and he was not living at home

[10:44]

anymore at the time where it got really bad but I remember that, you know, sometimes I

[10:50]

had to say to him, look, I just can't do whatever it was and I would feel terrible and, you

[10:57]

know, sometimes you see the disappointment in your children's face and it just, that

[11:02]

makes it even worse when you have to say, sorry, I can't go with you or your friends

[11:08]

can't come over because I'm not feeling well.

[11:13]

And how would you, you know, recently I went to a talk, it was by a professor at Harvard

[11:17]

called Arthur Brooks and he talks about four pillars to happiness, one of which is the

[11:23]

meaning of life and knowing why you are here and why you are who you are and what you're

[11:29]

meant to do.

[11:30]

He talks about family, he talks about friends and he talks about work and meaning at work

[11:35]

and when I look at all of those four pillars, it's extremely difficult when you lead a life

[11:39]

of pain to be present for your family the way you would like to show up, to be for your

[11:43]

friends the way you'd like to behave, to find meaning in your work when work is so difficult.

[11:49]

But then what I wonder about the most is how do you feel about the meaning of life overall?

[11:55]

Like when you're suffering so much, how do you think about that?

[11:59]

I guess I think maybe the pain is teaching me or trying to teach me to slow down or to

[12:08]

change something in my life, you know.

[12:13]

I thought about it from that angle a bit.

[12:16]

I think it's, you know, living with pain, only somebody that experienced pain can understand

[12:22]

that.

[12:23]

I think it affects everything and there were times when I, you know, would not be able

[12:29]

to, when I would see, you know, Jonas, my husband, being really upset for me and that

[12:36]

was the worst for me and it affected other people in my family.

[12:42]

I think as a woman you want to be, you know, you want to be that caring, that's that caring

[12:47]

side and you want to be there for your family and then you're taken out because of the pain.

[12:53]

Yeah, it makes it really terrible in families, especially also in children and in young children.

[12:58]

So there's a safety element that can come with it too.

[13:02]

And remember often saying, you know, I can't do this anymore.

[13:05]

I don't want to do this anymore.

[13:07]

I don't want to live like this.

[13:09]

And you know, I would always have times then where I would try something new, try something

[13:14]

different. And because I had so, so many, I feel that I tried so many things that haven't

[13:21]

made a difference at all that, you know, picking myself up again was not easy.

[13:28]

I did feel that in our first conversation.

[13:31]

We said, OK, I'm here yet again.

[13:33]

What is it that I have to do?

[13:34]

Like, OK, we give this a go.

[13:36]

Like we gave a go to so many other things.

[13:39]

End of the conversation, like we had a really good fit and a really good, like it was a

[13:43]

joyful conversation. We're like, oh, yeah.

[13:45]

You know what? Maybe I have hope.

[13:46]

I understand what you say and it kind of makes sense.

[13:48]

So, you know, I can see why that could possibly eventually maybe, maybe, maybe work.

[13:55]

Yeah. Yeah. I was very hesitant.

[13:57]

Yeah. And I think, you know, for me, what happened is I listened to the podcast and

[14:04]

then I started, you know, looking into you and I thought, this woman is in New Zealand.

[14:09]

I'm in New Zealand.

[14:11]

You know, I thought, this is a sign.

[14:13]

And I think that was what really then made me contact you and do the test because it

[14:18]

just affected you in Auckland.

[14:20]

I don't know why that made such a difference for me, but it was.

[14:23]

It just felt quite close physically, you know, we've never met in person.

[14:29]

Yeah. And we're also close originally.

[14:32]

I'm from Belgium. So that's right.

[14:34]

That's right. But indeed, like for me, and so how did you find me in the first place?

[14:40]

Like you were just browsing the web or?

[14:42]

No, I've got a subscription with Audible.

[14:46]

So that's where I get my books through, you know, and I, you know, I always try to read

[14:52]

and find out about migraine and how other people are dealing with it.

[14:56]

So often I just, you know, put it in as a search, as a search word.

[15:01]

And then the podcast came up and I was actually driving to one of my pharmacies when I was

[15:08]

starting listening to it.

[15:11]

And I got totally hooked and I listened to most of them, I think.

[15:18]

And then at that night I did the test.

[15:22]

Yeah.

[15:22]

And so there were the Migraine Heroes podcast.

[15:25]

Do you remember some of your favourite stories to share with others?

[15:28]

Wendy.

[15:29]

Yeah, I remember Wendy.

[15:31]

And I really resonated with that because she, her pain sounded so terrible and she was so

[15:37]

desperate and that resonated with me, that desperation, you know, and that tried everything,

[15:43]

taking all this medication, nothing helps.

[15:46]

She sounded amazing, you know, when she was speaking with you on the podcast and how good

[15:51]

she felt.

[15:52]

And I thought, wow, there's people out there where that really made a difference.

[15:56]

Yeah, she's a really special soul.

[15:58]

And I don't know if you've listened to her husband's podcast, which is brilliant as well,

[16:03]

And then maybe also Samantha or Sylvie.

[16:05]

There's a couple that are in that generation, but maybe you don't remember as much.

[16:10]

Yeah, there was one lady also from New Zealand.

[16:12]

Yeah, Samantha or Sylvie.

[16:14]

Yeah, yeah.

[16:15]

I remember her as well.

[16:16]

Yes.

[16:17]

She sounded like she was more my age for a kid, maybe.

[16:20]

Yeah.

[16:21]

Especially in her pain, she developed a similar pattern.

[16:23]

And so why we do all these stories is to also show women, men and children how many patterns

[16:29]

there can be and how many journeys with pain there can be.

[16:33]

They feel very unique, but they're like, okay, I resemble more Suzanne or I resemble more

[16:38]

Wendy or Amanda or Sylvie.

[16:41]

But I can find some people that resemble me and I understand why, you know, why migraines

[16:45]

are so complex.

[16:46]

Very good.

[16:47]

And so then we met.

[16:48]

We met.

[16:49]

So what we did is, and usually I divide the call in three parts.

[16:52]

The first part where I listened to you, I didn't know as many details as I know now,

[16:56]

but you explained to me your pattern of migraines and how they evolved.

[17:00]

And then I usually explain to you why you have migraines in the first place, how all

[17:03]

of the symptoms that you experience relate to those migraines and interrelate together

[17:08]

to four root causes that sit below your migraines.

[17:11]

And then I usually explain how I work.

[17:13]

So we spent that time together, which I really enjoyed.

[17:15]

I was really not long ago and I really enjoyed the conversation.

[17:18]

And I also really enjoyed your doubts because I'm like, yeah, you see, I'm different.

[17:24]

And I understand everything that goes through your mind, but I also, I've seen a lot of

[17:29]

the patterns, even though not two women are the same and we're never treating people the

[17:33]

same.

[17:34]

We take your body as it comes, but I had seen a lot of the conditions that you were experiencing

[17:38]

and I'm like, well, you know, let's see, let's see how it is.

[17:41]

So do you want to tell from your part, like how you felt in that call and then maybe after

[17:46]

that call?

[17:47]

Yeah.

[17:48]

Like you say, I was a bit hesitant and you know, my, my motivation was just can't make

[17:54]

it worse.

[17:55]

You know, maybe this is something.

[17:56]

So, you know, I was still on this journey of finding a solution and, but because I had

[18:01]

so many negative experiences in the past, nothing really helped me that I tried.

[18:07]

Then I thought, oh, you know, it always sounds a bit very, very, yes.

[18:15]

But then I thought, look, there's nothing to lose and I give it a go.

[18:18]

And you were so energetic and you kind of explained it so well to me that I thought,

[18:24]

yeah, this all makes sense.

[18:25]

You know, the way you explained my pain to me and, you know, where you think it might

[18:31]

could come from.

[18:32]

And, and, you know, I sound like you knew me and that really helped to ease my mind.

[18:38]

And I also love the idea of what you're doing with this app, you know, I think this is amazing.

[18:43]

The simple fact that I track my COAM every day, that's amazing, you know, for starters,

[18:50]

I tried it in the past to track my headache, it kind of never worked out.

[18:55]

And now because I'm getting the feedback as well, you know, from you guys, this is great.

[19:00]

And I can see, you know, myself, how I'm tracking and how many blue days, you know, when I'm

[19:07]

sharp and free, I'm having, you know, so I love, I love the concept and how you do it.

[19:13]

I like that Helene is jumping in sometimes, you know, you have different people.

[19:21]

It's all down, it's all virtual and actually totally connected.

[19:26]

It's like a community.

[19:27]

Yeah, it's very true what you say, very, very, very true.

[19:32]

Even though it's all virtual, we feel incredibly connected and I have to tell you on the behalf

[19:37]

of, so Helene is based in Lyon in France and we've been working together for about two

[19:41]

years and a half and we feel incredibly connected to one another and incredibly connected to

[19:46]

the woman.

[19:47]

And I remember this one thing when I meet someone, first of all, indeed in that second

[19:51]

part of the conversation and you got me, well, I really understand you.

[19:54]

By that time I'm like, yeah, I understand Suzanne, I understand not just the migraine

[19:58]

she has now, but the journey that led to where she is today, which I explained to you and

[20:04]

I think that brings a massive relief of, oh my God, I am actually making sense.

[20:11]

So for 10 years I thought I was erratic, my body wasn't making sense.

[20:15]

Now I understand that I actually, the decisions that my body is making is actually to protect

[20:20]

me, to make the problems as small as possible and to actually, you know, in a really smart

[20:25]

way, keep me healthy, even though it doesn't look like it.

[20:29]

And then I really, you know, when I'm on board you, I really give you my word in the most,

[20:34]

you take my soul with you.

[20:36]

And so, and for you, I never look at, oh, we need to get 80 to 90% of success.

[20:42]

No, no, no, no, no.

[20:43]

I'm like, this is 100% of Suzanne's life.

[20:47]

And for her, it's 100% of who she's going to be for the future and how she's going to

[20:52]

show up to the world.

[20:53]

And so we pour our heart and our soul into our work.

[20:56]

Yeah.

[20:57]

Yeah.

[20:58]

And you can feel it.

[20:59]

I love how we also send emojis when we direct, we're like, girl, yeah, keep going.

[21:07]

And you know, and if it's not such a good day, then there's always encouragement.

[21:12]

You know, when I just feel like, and you know, I open the app every day multiple times because

[21:18]

I keep forgetting how much of what to put in what.

[21:21]

And so, you know, I'm looking at it all the time and I just feel so good about it.

[21:26]

Yeah.

[21:27]

I showed my husband and I shared it with him and I said, look at this and look at that.

[21:31]

And he goes, oh yeah, but he doesn't have that connection like I do.

[21:37]

I mean, he thinks it's great, but it's more for me, it's a different level.

[21:42]

Yeah.

[21:43]

It's hard to explain.

[21:44]

It's hard to explain.

[21:45]

And I have to say that what you feel, we as a team feel as well.

[21:50]

So we have no investor, I'm completely bootstrapped.

[21:52]

And so we're together and together we're joined by a collective of, we want to do good and

[21:58]

we know we are able to do good.

[21:59]

So even I would say our lead developer, like who takes care of all of the app, he sees,

[22:05]

so whenever we have good comments in the chat, we have every day, like where people

[22:08]

say, yay, you know, I was like, I'm in a situation with our manager, yay, you know, I wasn't

[22:13]

expecting this.

[22:14]

We always anonymize the first name anyway, there's no last name, but we remove the first

[22:18]

name and we put a hashtag team victory and we send it in our internal chat because it's

[22:23]

the definition of why we show up every day.

[22:25]

So the lead developer, he works every day.

[22:28]

If you have a bug on a Saturday or on a Sunday, he's there.

[22:31]

And he says, look, for me, it's a dream job because I see the engagement.

[22:33]

And Susanne and other people, I see that everyone's inside the app, they're working,

[22:37]

they're tracking and that people are making progress and it's what fuels the team's energy.

[22:43]

It indeed translates in beautiful energy and we have a lot of like really cool features

[22:47]

that we want to add now inside and see it continue to evolve.

[22:52]

Like the first woman, they had paper trackers and they didn't know each other, but now we

[22:56]

have a community inside.

[22:57]

And so it really touches me.

[22:59]

I'll have them listen to the podcast because it really touches me that you feel that because

[23:04]

that's how a day to day, like I'm going to wake up, I have all of my chats from the social

[23:09]

media team.

[23:10]

We have a chat on just taking care of people and, okay, she's doing great.

[23:14]

She had, she just lost her dog or her mother or, you know, she just, her boss is quite

[23:20]

terrible.

[23:21]

And we have all of these conversations.

[23:22]

They're completely caring.

[23:23]

And so we wanted to have a private chat, like a long time ago, I used to rely on WhatsApp

[23:27]

and I thought, okay, no, I really want the confidentiality, but we do need the chat and

[23:32]

we also use a lot of voice messages.

[23:34]

Sometimes I want to convey something which is quite complicated and I'm like, okay, let's

[23:38]

use voice for that.

[23:39]

Yeah.

[23:40]

I love that.

[23:41]

How you sometimes send us short voice messages.

[23:43]

I remember you sent me something about wind migraines and how to wear a scarf.

[23:48]

I just said, oh, and then I thought, oh, this is amazing.

[23:52]

And it didn't make so much sense for me.

[23:53]

I mean,

[23:54]

Didn't make so much sense.

[23:55]

What we're trying to do is we're trying to teach her, we can't teach you everything and

[23:59]

there's no point.

[24:00]

But if we teach you, you, you can see, ah, I see what she means and, oh, I see what that

[24:06]

migraine is coming from and how I cut it short.

[24:08]

Oh, I can see, I can abort that migraine with a T.

[24:11]

Yeah.

[24:12]

Really, really cool.

[24:13]

Yeah.

[24:14]

Where you can feel, oh my God, I have power, I have control from my kitchen.

[24:19]

With migraine disease, we only have each other to make a difference.

[24:23]

If you know of someone suffering from migraine attacks, share this podcast with them.

[24:29]

And so how do you find, so we always add foods, we don't take over your diet.

[24:34]

Do you find that easier with your family?

[24:36]

That works really well for me.

[24:37]

I mean, especially the infusions, you know, they, I, I love them and, you know, I'm drinking,

[24:45]

I think I'm also drinking more any because of the infusions, but I love trying out those

[24:50]

new tastes and, you know, I, I know now a little bit what really works well.

[24:57]

And with the foods, I, I've just tried to add it to, you know, whatever we are eating

[25:02]

anyway.

[25:03]

And I didn't get well 100% of it, if I can't, if I can't get something, I can't get it.

[25:09]

I think I've tried everything at least once.

[25:12]

And the other thing that I find really amazing is that most of the things, you know, that

[25:16]

you're suggesting, are things that I end up liking, you know, that I, that I really enjoy

[25:22]

eating or drinking.

[25:24]

Because they suit you.

[25:25]

And the body says, Oh yeah, I'm more of that.

[25:28]

Yeah, exactly.

[25:29]

It's almost like that.

[25:30]

You know, and that's really, really nice.

[25:32]

And sometimes I have, you know, just little empty tea bags where you can just put stuff

[25:37]

in when I go to work and, yeah, because it makes it really easy in the workplace as well.

[25:41]

It's not hard at all.

[25:43]

It's actually, it's fun.

[25:45]

It's adventurous.

[25:46]

It's so good for me, you know, I've been feeling so good about it.

[25:49]

And so how did you, so you started, and so I have, you know, it's funny, I have your

[25:53]

trackers in front of me.

[25:56]

When you started, indeed, you had like really massive migraines, like a terrible day.

[25:59]

So a terrible day for the liver is the highest, and so it's kind of a thunderstorm.

[26:04]

That means like I'm hitting, you know, I was, I woke up with a migraine this morning.

[26:10]

I feel super low, no energy, slept a lot today.

[26:14]

I was also hungry all day.

[26:15]

So this is a bit like where you start, and then you have half a day of rest and bam,

[26:21]

you have again, a pain that is really, really high.

[26:24]

So you woke up with left side migraines on the head, jaw, temple, left eye, and the pain

[26:28]

got progressively worse.

[26:30]

So these are your first few trackers.

[26:32]

When that happens, I mean, we're used to it.

[26:34]

We're used to the language.

[26:35]

We're used to seeing, you know, massive amount of pain and sort of no rest.

[26:40]

And then things started to get better.

[26:41]

Yeah.

[26:42]

You know, the first few days I'm thinking, oh yeah, you know, I get a few days without

[26:49]

feeling too bad.

[26:51]

I think I have a few days in there where I probably put in that I had mild pain.

[26:55]

That already to me is a huge, was a huge success, you know, and still is, when it is not getting

[27:03]

to that point where it's absolutely terrible, when it's just kind of there.

[27:08]

But that's usually for me, that always used to be the start of something.

[27:13]

Sometimes it can be like that for a day and it doesn't develop into anything, you know?

[27:17]

Yeah.

[27:18]

How great is that?

[27:19]

For me?

[27:20]

Yeah.

[27:21]

It's really amazing.

[27:22]

Yeah.

[27:23]

Yeah.

[27:24]

And more often than not right now, I'm totally free.

[27:27]

I always explain, and so I told you probably at the beginning, but it's really hard to

[27:31]

relate to.

[27:32]

So this is why this podcast is a bit different than others.

[27:34]

And we talk about this.

[27:35]

I always say the pain is going to decrease in intensity and in frequency until it disappears,

[27:42]

which is a bit of a surreal sentence, but it's exactly the definition of how you were

[27:45]

feeling it, where initially you have a bad day, it's a terrible day, and it continues

[27:50]

with a really high, like a really, really cloudy day.

[27:53]

And little by little, this space out, which means that your brain gets a rest, which is

[27:58]

massive.

[27:59]

Yeah.

[28:00]

Yeah.

[28:01]

And it means that your digestive tract gets a rest from medication, and then you're going

[28:05]

to less frequent, also less painful menstruation.

[28:08]

So then how did you manage your medication, for example?

[28:11]

I haven't taken tryptamine medication in the last three or four weeks, which is, I don't

[28:19]

know when was the last time when I had such a long stretch of not taking that strong medication.

[28:25]

I think I had one day in there in the last few weeks where I took over-the-counter medication

[28:32]

and that was it.

[28:34]

And so that's also what I love is in the app, we put a list of triggers and I always say,

[28:37]

okay, don't obsess about the triggers because eventually you will digest them.

[28:41]

It's just that currently they're making something weaker.

[28:43]

Some of them you will know, some of them you won't know.

[28:45]

So we're only indicating them in case you take them on a daily basis to be healthy sometimes,

[28:50]

you know.

[28:51]

Sometimes they can appear as really healthy foods.

[28:53]

And I love that sometimes you're like, okay, let's just be naughty today and have two days

[28:57]

without two glasses of bubbles.

[28:58]

I deserve them.

[28:59]

Exactly.

[29:00]

Exactly.

[29:01]

And, you know, I kind of knew then that I probably, you know, I'm not strong enough

[29:06]

just yet to just have no effects from that.

[29:10]

But it was worse at the time and, you know, and it could have been so much worse the next

[29:15]

day.

[29:16]

And there was a headache and I had to take some medication, but it was okay.

[29:20]

Yeah.

[29:21]

Over-the-counter and then the day after it was over already.

[29:24]

Yeah.

[29:25]

Exactly.

[29:26]

And that's beautiful.

[29:27]

And that's really the definition of the pain is decreasing density and frequency until

[29:30]

it appears.

[29:31]

It's also like when we start to be able to reintroduce sort of triggers as long as we're

[29:37]

easy with it, then the body says, hey, it's okay.

[29:41]

Yeah.

[29:42]

You know, the other thing I really love in the app is the habits and triggers.

[29:46]

I'm doing foot baths as well.

[29:48]

Not every day, but I mean, it's winter here right now, so it's probably a bit easier.

[29:53]

And then I'm always doing the hot water bottle at night on the tummy.

[29:59]

And I find that that makes, again, intuitively so much sense for me to do that.

[30:07]

Yeah.

[30:08]

It's good.

[30:09]

You know, I'm also sleeping better.

[30:11]

Yeah.

[30:12]

Sleeping will always improve.

[30:14]

I don't know if you have, I mean, you will probably see that intuitively.

[30:18]

Some people come in and they say, oh, my deep sleep doubled.

[30:20]

I'm glad you noticed it.

[30:21]

Yeah.

[30:22]

Sometimes it's interesting.

[30:23]

And so when we finish, I usually go over all the symptoms and there's some symptoms that

[30:27]

one forget, like they have to actively think about it to remember what used to happen in

[30:33]

their body.

[30:34]

Because once it goes away, it goes away silently.

[30:36]

Migraines are really loud.

[30:37]

There's usually lots of other symptoms that are much less loud and that disappear along

[30:42]

with it.

[30:43]

One of which is sleep.

[30:45]

So it's quite special.

[30:46]

And then, so what happened is that I remember, so we get all of these beautiful comments

[30:52]

in the chat.

[30:53]

So we get some every day and every day we share them with the team, because again, it

[30:55]

fumes everyone with energy and keeps everyone going and the beat's drumming.

[30:59]

It's like the heartbeat of the fume, you know, that energizes all of us.

[31:03]

And then I'm in a tech meeting.

[31:05]

And at that time, you post something in the community and you post this beautiful sunset.

[31:10]

And you want to talk about that, that's really pretty, that showed that trigger.

[31:14]

And I was like, oh, who's that, who posted that beautiful sunset?

[31:17]

It's actually a sunrise.

[31:18]

Oh, it was a sunrise?

[31:19]

Yeah.

[31:20]

Yeah.

[31:21]

On a beautiful Nelson morning.

[31:25]

And so what happened felt like a little miracle.

[31:29]

I don't know how else to describe it.

[31:32]

I woke up with the typical signs of a migraine coming on.

[31:36]

And for me, they often happen like that, I wake up with them.

[31:40]

So I have all the pain coming on, feeling sluggish, yeah, just not well.

[31:47]

And I made myself one of the infusions and I sat down and I had the tea and then I thought

[31:54]

about taking medication.

[31:57]

And suddenly I realized, wow, I'm so much better.

[32:01]

It's gone.

[32:02]

It was going away.

[32:03]

So I kept drinking and after half an hour, I was fine.

[32:07]

And then I kind of sat there and I kind of waited because I couldn't quite believe it.

[32:12]

But I was good, I was good all day.

[32:15]

And I thought that was almost unreal.

[32:18]

That's how it felt to me, you know, and then I could manage it.

[32:23]

With the infusion, yeah, absolutely.

[32:25]

And this is because of those instances that we created the Migraine Now button, which

[32:30]

is going to try to guide the woman when the migraine comes, because we've noticed that

[32:34]

women over time would really be able to stop the migraine, sort of, it would start to come,

[32:39]

the problem would come and then they would be able to completely stop it, which gives

[32:43]

a really feisty anxiety because it means I have some control, I can do something else

[32:48]

than take a medication and I can go back to my day the way I planned it originally, which

[32:54]

is really, really special.

[32:55]

And so I want to say a huge thank you because in that moment, you put that a lot of women,

[32:59]

they would usually put that in the chat because they also have the anxiety.

[33:03]

I don't want to crystallize that moment in case something happens, but you put that in

[33:07]

the community, which was a buntyful and I thought it was really, really nice.

[33:11]

I was so excited about it at the time that I thought, you know, people need to know that

[33:18]

it can happen, you know, it's trusting in the process and trusting in yourself, I guess

[33:25]

is what I've learned, you know, that it's all in me.

[33:29]

I love that you say that it's all in me and I think trusting, yesterday I did a podcast

[33:34]

with a woman in the U.S. on functional fertility and we talked a lot about intuition, which

[33:39]

is when you're in a place of pain, it's really hard to comprehend.

[33:43]

But once you start to crack and understand and fragment the different kinds of migraines

[33:48]

you have, you're like, oh yes, it is all in me and it is all in some level of control

[33:53]

because there's always stuff that can happen in life you can't control, like a parasite

[33:56]

in the food.

[33:57]

Exactly.

[33:58]

You can't always control the quality of your food, things like that, but it's quite special

[34:03]

and I really want to acknowledge one thing is as women listen to us, a lot of them will

[34:11]

be in pain and I've sometimes heard, you know, hearing of someone not in pain anymore sometimes

[34:18]

can make me think, oh, that's not going to be me and I'm going to be an exception.

[34:23]

And, you know, when I heard people talking about how good they are now, I mean, it is

[34:29]

a journey and I'm still on that journey and I just want to encourage people to give it

[34:35]

a go and, you know, I'm feeling so much better right now, it doesn't mean that I don't understand

[34:42]

how horrible it was, it's only a couple of weeks ago for me or maybe three weeks ago

[34:47]

and so I have a very vivid memory of how horrible it can be.

[34:54]

And two things, one is I remember also when it started to get better, you probably said

[34:59]

something in the chat along the lines of, it's almost too good to be true, I'm like

[35:03]

Dutch wood, but I'm still like so scared.

[35:06]

And so I did, I sometimes do that alone video, so it's a video where you see the screen and

[35:11]

you see me and I walk you through your data and I was showing how a number of things had

[35:16]

changed that were leading me to think things were stable and so I was showing evolution

[35:22]

in your tongue image as well as in your bowel movement and saying, okay, from the moment,

[35:27]

so your tongue is linked to your vagus nerve, which is linked to your brain and all of your

[35:30]

gut and the bowel movement is also part of that gut brain axis.

[35:33]

And so from the moment those two were a lot more stable, that does mean that the brain

[35:38]

is a lot more stable and that the body is overall very logical, which then brings a

[35:43]

bit of rationale.

[35:44]

So it's not just a coincidence you're feeling better, it's your whole body is responding

[35:48]

better.

[35:49]

And so you can also give you that night of sleep where you don't think about, oh, maybe

[35:53]

the term is going to be ruptured.

[35:55]

It can be very stressful to be well.

[35:59]

And then one more thing I really want to say is also thanks to women like Suzanne and thanks

[36:04]

to all of the women who have preceded Suzanne, some of which were incredibly difficult cases

[36:10]

or really with weird situations.

[36:13]

But the fact that they had grit and the fact that we were chatting all along and the fact

[36:17]

that we took their life, like 100% of their life saying, it doesn't matter how others

[36:23]

do, we want you to be out of migraines.

[36:26]

It allowed us to solve really complex situations involving child trauma, child abuse, involving

[36:33]

people having to take antibiotics each time they had sex.

[36:37]

Otherwise they would have UTIs, so having recurring antibiotics because of other problems

[36:41]

and solving those problems so that there would be no more antibiotics, therefore there would

[36:44]

be no more funginess, which solves repetitive UTIs, bloating, digestion issues, leaky gut,

[36:54]

dysbiosis, endometriosis, or at least reducing it to a very manageable level, very painful

[37:01]

menstruation, clots in menstruation, baseball-sized clots in menstruation.

[37:06]

And it's all of these women that are not just coming in the podcast like Suzanne, but that

[37:11]

are coming with open hearts to explain their symptoms that allowed us to solve for them,

[37:18]

that allowed us to be better at solving it for extreme cases that say, OK, then Suzanne,

[37:24]

then it looks more like a walk in the park, thanks to a number of these women that have

[37:28]

been preceding us.

[37:30]

So I really want to encourage, don't feel isolated, don't feel unique.

[37:35]

We're really coming for you.

[37:37]

We're also going to have a freemium in the app at some point, because I really admire

[37:44]

that you were still able to work.

[37:46]

So you powered through, you pushed through a lot, so you took on, hey, I'm just going

[37:50]

to go back a bit earlier today to try to hide the pain.

[37:55]

A number of women have been fired because of migraines out of their relationship or

[37:59]

live with their parents for a really long time in between four walls because they can

[38:03]

no longer work.

[38:04]

And we also want to come to them.

[38:06]

And I think you testifying today helps them to maybe follow the process without someone

[38:11]

to hold their hands.

[38:13]

Exactly.

[38:14]

It's a very personal process.

[38:17]

Although you don't see somebody in person, it's still, I find it very personal and very

[38:23]

caring.

[38:24]

So thank you for that.

[38:26]

Yeah.

[38:27]

And look, it goes, you know, it's me, it's Elaine, the people in the tech team.

[38:31]

It's also even, you know, to my assistant, like, you know, we all really, really care.

[38:35]

Like the excitement of everyone comes through your posts in the community, through all of

[38:39]

these chats that we have, to all of these women that finish showing you lights for others.

[38:45]

So we look forward to continuing to take very good care of you, Suzanne.

[38:49]

Thank you.

[38:50]

I think I need it for a little bit longer, you know, I don't feel like I'm finished yet.

[38:55]

And we feel that too, and we want to bring you to a place where you're really stable.

[38:59]

And what we usually do is then we meet again at the end, where it's usually for me the

[39:03]

first time I meet a woman because she's just opened up, blossomed like a flower, where

[39:07]

she's just enthusiastic about life.

[39:10]

She's back to working a bit more, having more impact in her community or in her family.

[39:16]

And then we go over all of the symptoms to make sure that everything's gone.

[39:19]

And sometimes there are a few symptoms that are a bit stubborn and then tend to come back.

[39:23]

And we put a maintenance list where it's like, oh, whenever you see that one, you know, popping

[39:27]

up its head again, just hammer it with this food or that food.

[39:30]

So we put sort of a maintenance list and we leave the app open for you in Infinity where

[39:35]

you have that list.

[39:36]

And then look, if something happens in your life, again, we're not changing your genetics.

[39:40]

If something happens in your life, you can always, you know, pop in for a quick fix and

[39:44]

say, oh, I don't know, I went through a period of stress and, oh, I had a long COVID or poisoning,

[39:50]

you know, that was quite intense or, you know, something happened to me.

[39:53]

Can I get a quick fix?

[39:54]

And then it's a matter, my experience is a matter of three, four days and then people

[39:57]

are gone.

[39:58]

Yeah.

[39:59]

It's really special.

[40:00]

Look, it's made with a lot of intent and a lot of love.

[40:01]

And I have to say that if I had not lived in New Zealand, I would have not had the courage

[40:05]

to quit my corporate sort of regular career and say, you know what?

[40:10]

Enough is enough.

[40:11]

Women, you know, really need health and what's going on is not sustainable for women.

[40:16]

So.

[40:17]

Thank God you did.

[40:18]

You know, you're making a difference certainly in my life, big time and in a lot of people's

[40:24]

lives.

[40:25]

So yeah, keep doing what you're doing.

[40:27]

Thank you.

[40:28]

And look, a huge thank you, Suzanne, for coming and for just being you and being so authentic.

[40:33]

Thank you for all of these women that listen to you and feel the resonance with your story

[40:37]

and your journey.

[40:38]

Right.

[40:39]

Thank you.

[40:40]

Thank you.

[40:41]

The content in this podcast should not be considered a substitute for medical professional advice,

[40:46]

diagnosis or treatment.

[40:49]

Always consult with your health care provider for any health related concerns.

[40:54]

And remember, everyone and every situation is unique.

[40:59]

Remember, sharing is caring.

[41:03]

Share your story with me.

[41:05]

Take my free test and let's connect to help you gain a deeper understanding of your migraine

[41:09]

profile.

[41:11]

Learn about the underlying imbalances that could be contributing to your genetic predisposition

[41:16]

for migraines.

[41:17]

Join our community of migraine heroes.

[41:20]

All the links in the description below.

[41:24]

Take my free test and let's connect to help you gain a deeper understanding of your migraine profile and help you gain a deeper understanding of your genetic predisposition for migraines.

[41:27]

Join our community of migraine heroes.

[41:29]

All the links in the description below.

Originally published August 2024

Don’t miss an episode

Subscribe to the Migraine Heroes Podcast on your favorite platform and get evidence-based insights twice a week.

Back to Member Stories

Curious about the Migraine Heroes approach?

Discover your unique Migraine Profile—a clear picture of why recovery has been difficult. This report will shed light on the complexity of your migraines and reveal your healing potential.

Take Your Free Migraine Assessment
Can Lifestyle Changes Help with Migraine? | Migraine Heroes