Migraine Heroes
How Migraine Heroes started: Diane’s Holistic Journey
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How Migraine Heroes started: Diane’s Holistic Journey

47 min

00:00
-47:00

Dive into Diane's transformative journey from personal health challenges to a mission-driven approach to help others manage migraine through holistic methods.For Migraine Warriors: This podcast is a beacon for those seeking answers and support. Remember, you're never alone; there are over one billion individuals worldwide battling migraine disease.

Episode Highlights: ⛷️ Recovery from The Skiing Accident: Discover how Diane's skiing accident led to the discovery of Chinese Traditional Medicine. 🧭 Navigating Loss and Health Struggles: Diane's exploration of migraine facts and pain relief methods was sparked by personal losses and her sister's struggle with migraine. 🤝 Helping Others with Migraine: Diane's family experience with migraine and newfound knowledge motivate her to develop a unique methodology to address the root causes of migraine to assist others who have it. 📱 Developing the Nectar App: Find out how and why migraine management app with features such as a daily migraine tracker, chat function, “migraine now” button & supportive community was created."

Transcript

[00:00]

Hello, this is the Migraine Heroes podcast, a podcast where we share real stories from

[00:11]

real people suffering and battling with migraine disease.

[00:16]

In this podcast, we seek to provide support, hope, holistic health advocacy, and inspiration

[00:23]

for those who suffer from migraines.

[00:28]

The content in this podcast is for informational purposes only and should not be considered

[00:33]

a substitute for medical professional advice, diagnosis, or treatment.

[00:39]

Always consult with your health care provider for any health-related concerns.

[00:44]

And remember, everyone and every situation is unique.

[00:50]

Hello, I'm going to do a bit of a solo episode on how things started and what

[00:58]

it is that I do day to day, you know, so that I create just more transparency on my

[01:04]

life and why I do what I do.

[01:07]

Everything started when I was 17.

[01:11]

I was in the French Alps after my exams, and I was with a lot of other students and we

[01:16]

were going all of us skiing.

[01:20]

And one of those was my boyfriend.

[01:22]

And that morning we had gone skiing together, there was no one on the slope, it was just

[01:27]

perfect.

[01:28]

The snow was perfect.

[01:29]

The sky was blue and the sun was just shining.

[01:31]

One of those really perfect days where you have a bit of relaxation after a really intense

[01:36]

period of exam.

[01:37]

It was on the 28th of January, 2001.

[01:44]

And so we go in a snow park, and the reason why we do that is that my boyfriend at the

[01:49]

time, who I still really get along with, was a snowboarder instructor.

[01:56]

And so we go in the snow park, and I was an average skier.

[02:00]

And there was a jump, and he said he would do that jump.

[02:02]

And at the time, probably I still had the brain of a teenager, I don't know.

[02:08]

I wasn't thinking properly.

[02:09]

My daughter would say, you were trying to impress your boyfriend.

[02:12]

Probably there was an element of truth in that too.

[02:16]

But anyway, he looks at the slope to see how he wants to jump, and I'm like, look, I've

[02:20]

never done jumps, so I'm just going to go.

[02:24]

Stupid idea.

[02:25]

It was a jump done for snowboards, and it would end extremely vertically.

[02:31]

It was not one of those straight where the slope is straight.

[02:36]

It would really end and curve up.

[02:38]

And so I go, I curve up, my ski arrives in the sky, my head is down.

[02:46]

I'm almost like doing a half moon or a circle, just except, of course, that's not what I

[02:51]

intended to do.

[02:52]

That's not what I'm capable of doing.

[02:54]

And I'm up in the air, and I fall completely on my back.

[03:00]

And when I have that first impact on the floor, I start to have that moment of prayer.

[03:08]

And I'm like, oh, please, not that, not everything, but not that.

[03:11]

I was very conscious from past experience in my family that if you break your spine,

[03:19]

the future looks very different and difficult and challenging, beautiful, but really, really

[03:25]

challenging.

[03:26]

And so I was like, please, please, not a wheelchair.

[03:33]

And I was extremely conscious.

[03:34]

And those seconds were really, really slow.

[03:37]

And I don't know why, I bounced back three times on my back.

[03:41]

So I've had the time to really process what was going on.

[03:45]

And I get a ski in my forehead.

[03:47]

I fall on the floor.

[03:50]

And my first reaction is to see, can I move my limbs?

[03:53]

So I move my fingers and my arms, and I feel reassured.

[03:56]

And I start to try to move my leg, and I feel this massive pain.

[04:01]

And my whole body shuts down.

[04:03]

I had broken my femur.

[04:07]

So terrorized, my boyfriend calls the ambulance, and they take me in a, I don't know, in a

[04:15]

bed that these, you know, I don't know, with a motor, you know, a motor on the snow, like

[04:21]

pulls me to a flat place.

[04:24]

And on that flat place comes a first helicopter.

[04:27]

And I remember, I don't remember much.

[04:31]

I remember waking up naked in aluminum foil with, you know, I was really 17, with a gorgeous

[04:41]

man, you know, helping out and, you know, in the helicopter.

[04:48]

And then I again, you know, remember going into a second helicopter.

[04:52]

And so basically, I was being transferred.

[04:55]

I had broken my femur.

[04:56]

If you broke your femur and you break the artery next to it, you have, you know, a couple of

[05:01]

minutes to live.

[05:03]

Luckily, you know, I was losing my blood big time, but everything was inside my body and

[05:09]

not, and not too fast, although I still lost half of my full blood.

[05:17]

And so I go to the second hospital and I, there I have that memory of shouting in the

[05:22]

corridor.

[05:22]

And I could really feel that, you know, maybe some of you were taken to emergency room and

[05:27]

for migraines with aura and would, you know, have that massive shout and cry where you're

[05:33]

so ashamed of yourself, but you're beyond shame.

[05:36]

You're in so much pain, so much pain.

[05:39]

So I would, I would, you know, all of those hours were interrupted between shouting and

[05:44]

losing consciousness until I lose consciousness again and arrive in the hospital room.

[05:51]

And there, I don't know, I think I fall asleep.

[05:55]

And little by little, I get the diagnostic and the doctor comes and says, OK, so you're

[06:01]

not going to be able to drive.

[06:03]

You're not going to be able to walk for a year.

[06:05]

And I was like, I broke my leg.

[06:07]

And I remember the doctor saying, no, no, no, you didn't break your leg.

[06:10]

You broke your femur.

[06:11]

So if you don't know what the femur is, it's the big, big bone.

[06:14]

It's the biggest of your body, which is in your upper leg, in your thigh.

[06:20]

And I was really lucky because you can repair a femur and you can't repair a back.

[06:25]

And somehow, I don't know, somehow that day I got really, really lucky to break a bone

[06:31]

that, you know, we could repair.

[06:32]

And so I got operated, remarkably so, by a doctor, a remarkable doctor in Tonon-les-Bains.

[06:41]

His name might come back to me.

[06:45]

And so they put a pin inside my femur.

[06:47]

And in that operation, I lose half of my blood, literally.

[06:52]

I went from a scale of 140, I get to 70.

[06:56]

At that time, there were problems of contaminated blood in France.

[07:01]

And so I don't know exactly the ramifications of the story.

[07:05]

But I think healthy people had received blood that was contaminated with disease

[07:09]

and therefore had gotten the disease themselves.

[07:12]

So it had made scandals.

[07:14]

There were lawsuits and there were a lot of blood that had to be thrown away.

[07:21]

So they said, you know, she's borderline.

[07:23]

She's, you know, really young.

[07:25]

She's going to survive.

[07:27]

And so I was not transfused.

[07:30]

And it's interesting, I still remember my mom, when she came to visit me the first time,

[07:33]

she had a big smile.

[07:35]

She asked me if she could take a picture of me, and I refused.

[07:38]

I regret that now.

[07:41]

And when people would see me, they would make these really weird comments.

[07:46]

Like they would say, you look very gothic.

[07:49]

I'm like, you know, I'm asking my boyfriend, why do they say that?

[07:54]

And he's like, I don't know.

[07:55]

And then someone, you know, another nurse came into my room and says,

[07:59]

you don't need makeup.

[08:00]

And I'm like, why is she saying that?

[08:01]

It's like, I don't know.

[08:04]

And then one day a nurse came to see me and she said, do you want to see yourself?

[08:10]

And I'm like, see myself?

[08:12]

You know, I could feel my nose was in the right place.

[08:15]

I hadn't showered in a couple of days, but that's just because I had no energy.

[08:21]

But I was like, see myself?

[08:22]

You know, I could feel, I felt my face.

[08:24]

I felt my eyes.

[08:25]

I'm like, what is she referring to?

[08:27]

And I had also a skin in my forehead and my blood was completely,

[08:34]

what color?

[08:35]

Maybe a combination of black, purple and blue all over the face.

[08:39]

And so I asked my boyfriend to get out of the room and I didn't want anyone to see me like that.

[08:43]

I was just, you know, so, you know, devastated.

[08:48]

Although, you know, well, it took, you know, two to three months to get away, but it's fine.

[08:53]

I still remember a month after I had one of my best friends sitting on top of my bed

[08:58]

and I was with a mirror trying to put my hair in a braid because they were so greasy.

[09:02]

I thought it would be more appropriate if they were at least put away.

[09:05]

And he took my mirror away from me and said, stop looking at you.

[09:09]

You're harming your heart and your soul.

[09:12]

Like you shouldn't, you know, obsess about your face.

[09:16]

I was like, I'm not trying to obsess about my face.

[09:17]

I'm just trying to put my hair fine.

[09:20]

But, you know, thank you for letting me know that I should just be completely

[09:23]

feeling bad about what I look.

[09:25]

And look, I didn't take it wrong.

[09:26]

It was coming from the right place.

[09:28]

But it's just to say that at that time, which was a month later, I was still very, very bruised.

[09:35]

What I later found is I had also a shrunken kidney, but at that time I didn't know it.

[09:40]

And so I stayed in the hospital in France for a long time, three, four weeks.

[09:46]

And then they can't send me by helicopter or plane back to Belgium.

[09:50]

They decided to take me with an ambulance, you know, lying down because I was still too weak.

[09:57]

And when I arrived in Belgium, they said, oh, my God, she's only at 90 over 140.

[10:02]

We have to transfer to her now.

[10:03]

And my parents said, look, we've been through that question.

[10:06]

Now we've decided not to take any risks.

[10:09]

We'll continue like that, which I was really fine with as a consequence.

[10:14]

But I didn't know all of the implications that would come with that because I was chronically

[10:19]

anemic as a child and how hard it would be for me to recuperate the last carats of my blood volume.

[10:27]

And so life goes on.

[10:29]

I stayed in that second hospital for some time and then I come back home with a wheelchair

[10:37]

and then crutches for a while.

[10:39]

I can't put my foot down.

[10:41]

And I go back to university or I start to study at home.

[10:44]

And I'm trying to finish my year and try to have no more holidays.

[10:52]

And after that, you know, it was a bit like if I was a car that whereas in the past,

[11:01]

I could go in the fifth gear.

[11:04]

Now I could only go into second gear or first gear.

[11:07]

And the moment I try to go into third or even into second, my body wouldn't follow.

[11:13]

And I just couldn't.

[11:14]

And so I was left with a whole new body.

[11:17]

I also suddenly gained about 12 kilos.

[11:20]

And I was really, really, really struggling to keep that weight down or to lose it.

[11:26]

And so I started to yo-yo diet.

[11:28]

Whereas when I was 17, I was extremely fit.

[11:32]

So that was like a whole new self, a whole new identity.

[11:38]

And I was, you know, I was struggling with that identity, even though I was still very

[11:42]

grateful that it was just a femur.

[11:44]

And I was going to get back on my legs that the doctor said it.

[11:47]

And, you know, over time, there was nothing wrong with me anymore.

[11:50]

But I was I was feeling very weak.

[11:53]

And at that time, around those years, I started to do these naps that would

[11:58]

last start at 2 p.m. and finish at 8 p.m. the next day.

[12:03]

And so my body was really, really limping.

[12:06]

So the first thing I tried to do was to get back into shape.

[12:11]

So what do you do?

[12:12]

You do lots of diets like protein diets and weight watchers and other diets like that,

[12:16]

which are, you know, serve a purpose.

[12:19]

But for me, the weight was coming from a profound imbalance inside of my body.

[12:23]

And so I went on continuing my studies like that,

[12:28]

really struggling with my weight, really struggling with my energy.

[12:32]

And and then starting to work and then doing my MBA in the U.S.

[12:39]

But whereas from the outside, you'd feel I'm fine.

[12:44]

And on paper, I was fine.

[12:47]

I was really struggling with fatigue.

[12:49]

I was no longer myself.

[12:51]

I was just a different, you know, a bit like I had stepped into a different body.

[12:56]

And initially, my right leg was tripled, the left one.

[13:01]

And and and, you know, and that would have me,

[13:05]

you know, be quite desperate because, you know, nothing would really fit.

[13:08]

You know, with the body so asymmetrical.

[13:11]

And but over time, with sports and other stuff,

[13:14]

things sort of moved back into a normal norm.

[13:19]

But I wasn't, you know, I had lost something along the way.

[13:23]

And through work, I worked all over Europe and South Africa.

[13:29]

And then I went on to be into the U.S.

[13:31]

Then I went to work in China.

[13:32]

I was just really curious.

[13:33]

I had been in China.

[13:34]

I had learned Mandarin.

[13:36]

I was just really curious about the culture and everything it had to offer.

[13:39]

You know, I felt like each time I was going there, I had some questions

[13:42]

and I would come back with more questions.

[13:43]

And there were things that were intriguing me.

[13:47]

And when I was in China, I met and I was pregnant.

[13:51]

I was pregnant with our daughter.

[13:54]

I went to the gynecologist and I remember she

[14:01]

shouted at me or yelled at me.

[14:02]

She was a great doctor.

[14:03]

She is a great doctor.

[14:05]

She said, look, you're borderline gestational diabetic.

[14:10]

You have to stop eating sugar.

[14:11]

You're putting on too much weight.

[14:12]

We're going to need to get that child out of your womb together.

[14:16]

And that it's a first.

[14:18]

And, you know, just don't eat so much.

[14:22]

And I cried and I told my husband, look, I'm not doing it on purpose.

[14:25]

It's really hard.

[14:26]

I'm really struggling.

[14:27]

Like I felt fatigue before.

[14:29]

Now I feel smashed, exhausted.

[14:31]

And at that time, I had on my to-do list to go and see Dr.

[14:35]

Zhang.

[14:36]

Dr. Zhang was my teacher.

[14:37]

She was, I had started to take traditional Chinese medicine classes on weekends.

[14:42]

I was just curious.

[14:43]

I had done cupping once.

[14:44]

It had really changed me massively.

[14:48]

And I was like, oh, I wonder, you know, I wonder what this is.

[14:51]

And I found her as a teacher, she was quite average.

[14:54]

I would have a lot of questions around how much sick I was and how much unwell I was.

[14:59]

And whenever she'd reply to an answer, she would say to a question, she would say, it

[15:06]

depends.

[15:06]

And I was like, look, either you know it or you don't.

[15:09]

You know, I like things a bit more clear, a bit more black and white.

[15:14]

And so I go to see her to sort of almost rule it out.

[15:18]

Like almost say, look, it's on my to-do list.

[15:20]

I'm keen to see, you know, do I prolong that love for traditional Chinese medicine or do I

[15:26]

just drop the whole thing?

[15:28]

And so I go and see her and I explain her some of the symptoms I have.

[15:33]

So you go and see a traditional Chinese doctor when you have, quote, unquote, nothing.

[15:37]

And I was thinking, quote, unquote, I have nothing.

[15:41]

And you explain all of the symptoms you have.

[15:43]

And she took my pulse, she looked at my tongue, and she asked me how I was eating.

[15:48]

And her conclusion was, you have not enough blood volume.

[15:54]

And that's why your legs are dry.

[15:57]

And in spite, you hydrate them.

[15:59]

This is why your hair is falling when you feel stressed.

[16:03]

This is why you have sugar cravings when stressed.

[16:05]

This is what you have a bit too much weight on.

[16:07]

This is why you're tired.

[16:08]

And this is why, in spite of you being fertile, your cycles are profoundly irregular.

[16:15]

And within three weeks, I was on my feet.

[16:18]

So she had given me a list of foods that I could eat that would help me increase blood volume.

[16:24]

And I had told her, look, I can't trust herbs.

[16:26]

I can trust you as a person.

[16:28]

But, you know, like herbs is a no-no for me.

[16:30]

She said, look, it's possible to do it with food.

[16:32]

It just requires a bit more discipline.

[16:35]

But it's completely feasible.

[16:36]

And a bit more discipline, a bit more patience.

[16:38]

But it's completely feasible.

[16:39]

And so that's what I did.

[16:40]

And after three weeks, I was flying.

[16:42]

I had so much energy.

[16:44]

I thought, oh, wow, that's really interesting.

[16:45]

And after having our daughter, my cycles became regular for the first time.

[16:50]

They were regular.

[16:51]

And I thought, oh, wow, that's crazy.

[16:55]

That's because I can't just order that.

[16:57]

You know, they were like 56 days, you know, 46 days, you know, 38.

[17:03]

They were all over the place.

[17:04]

And for the first time since that accident, they are actually regular.

[17:08]

And this is not something I can control.

[17:09]

So I went back to work.

[17:12]

And I shared that experience with my colleagues.

[17:15]

And they said, oh, Diane, it's placebo.

[17:16]

And I thought, oh, no, this is so not placebo.

[17:19]

I've tried too many things.

[17:20]

I am back to who I was when I was 17.

[17:24]

And I had so much energy in that, you know, second part of the pregnancy.

[17:27]

And I was just myself again.

[17:29]

And I'm like, no, something completely shifted.

[17:32]

So that got me really curious.

[17:34]

And so whenever we would have friends coming to visit or family coming to visit in Shanghai,

[17:40]

and they would talk to me about their health issues.

[17:42]

I'm like, I think I know someone who can help.

[17:44]

And so I take them to see her.

[17:46]

And she had this completely different logic.

[17:48]

And yet she would fix so many things that seemed unfixable or had been unfixable.

[17:58]

And so it got me more and more curious.

[17:59]

And I started to love that space and learn more, study more,

[18:03]

become really, really interested, absolutely fascinated.

[18:06]

And in that moment, I had the dream of doing what I do now.

[18:13]

But I thought, hey, it's impossible to create what a food is in the CNI.

[18:18]

Like, you know, how would I?

[18:19]

And plus, you know, I have such a quote, unquote, good career.

[18:23]

But having my daughter was really a moment.

[18:26]

I remember the first time she landed on my belly after birth.

[18:29]

What a massive slap in my face of, you know, of I think as a child

[18:35]

and in my values, I was someone raised to do good in the world.

[18:40]

And and for many reasons that are very personal,

[18:44]

a new life was short and very short.

[18:46]

And now finding meaning and finding purpose as a child

[18:50]

had always been very, very dominant in my brain.

[18:53]

And when our daughter was born, it was a massive slap in my face.

[18:59]

At the time, I was pushing consumption in China as a consultant.

[19:04]

And I think when when Manon came to life,

[19:09]

I really had this massive slap of what are you doing with your brain?

[19:14]

What are you doing with your heart?

[19:17]

You know, why are you wasting your time, you know, doing this?

[19:23]

And and and it was a process to accept my passion and to accept.

[19:32]

You know what I'm doing now, a long process,

[19:35]

a process of probably eight years of curiosity, thinking.

[19:40]

I know the universe is its timing, and I think I needed those years to process it.

[19:44]

Also, technology needed those years to be ready for what I'm doing now.

[19:49]

And so I had our daughter.

[19:51]

I still got to that next level promotion, which I thought would,

[19:55]

you know, give me a lot of respect to be a manager.

[19:58]

A manager.

[20:00]

And then and then I changed to move internally in a chart to to to really think through,

[20:05]

OK, what am I going to do with my life?

[20:07]

I had almost like a crisis of being 40, you know, at 29.

[20:12]

But it was the extent of my crisis.

[20:14]

It was very existential.

[20:15]

And why?

[20:16]

Why am I doing?

[20:17]

You know, what sort of world am I raising my daughter into?

[20:20]

And and how am I contributing to that world?

[20:23]

Like the bar suddenly became so much bigger of how what I do with my time

[20:28]

and how do I contribute to the next generation?

[20:31]

How do I be a good mom beyond, you know, with my brain, with my heart?

[20:37]

And so she grew up and we were living in Shanghai.

[20:40]

And and after Shanghai, we moved to New Zealand.

[20:47]

At that time, I faced a number of losses in my life.

[20:50]

The first loss was my godfather, my first godfather,

[20:53]

who died in a in a diving accident as a as a paracommando in the military service.

[20:59]

And he was he was when I was a child, you know, so much to me and almost,

[21:04]

you know, not a mother, not a dad, but very, very close in that field.

[21:09]

And I was devastated as a child.

[21:12]

And and now my second godfather was dying from a brain tumour, a glioblastoma,

[21:18]

which is an extremely violent form of tumour.

[21:21]

And I discussed with my sister and one of my sister says,

[21:25]

I haven't said anything to mom, but I have migraines and I think I have the same.

[21:29]

And and of course, you know, in the past, of course,

[21:32]

some friends had mentioned I have a migraine.

[21:34]

And of course, I'm not a saint.

[21:36]

I didn't hear them.

[21:37]

I thought they said I have a headache.

[21:38]

OK, I, I, I, I really I really mean it.

[21:43]

Like it had happened to me and I hadn't heard because I couldn't relate.

[21:47]

That day, one of my sister said that I thought, oh, hold on, suppose stop.

[21:52]

Well, it's quite a big deal.

[21:53]

You say that.

[21:55]

I don't think it's that.

[21:56]

But at the same time, you know, I don't want to leave you with all of that anxiety.

[22:00]

Let's call together, Dr. Zhang.

[22:03]

I was still working at the time.

[22:04]

I have had still a sort of a regular career.

[22:08]

And and we call her together and we she asked a bunch of questions

[22:12]

and she recommends a bunch of foods.

[22:14]

And three to four months after my sister no longer has migraines,

[22:17]

but I have no appreciation of the world of migraines,

[22:21]

no understanding of what it is, no nothing.

[22:24]

Yeah, I've just my sister said, I'm in pain.

[22:27]

And I said, I know someone who can help.

[22:28]

And together with that person, I help my sister.

[22:30]

End of story.

[22:32]

And and and and she was really happy and really relieved.

[22:37]

She had done three MRI in search of answers and nothing had worked.

[22:41]

But also the the doctor who gave the MRI said,

[22:43]

you look, you have to stop doing MRIs like there is nothing.

[22:46]

And even if there's something he said, you know,

[22:49]

it's not like I can have a magic wand about it.

[22:52]

So, you know.

[22:59]

With migraine disease, we only have each other to make a difference.

[23:04]

If you know of someone suffering from migraine attacks, share this podcast with them.

[23:11]

And let's let's try to move on peacefully here.

[23:14]

And so life goes on and I'm now living in New Zealand.

[23:17]

And in New Zealand, I don't have Dr. Tang anymore.

[23:21]

I don't have her for myself, for my family.

[23:24]

But I also don't have her for my friends.

[23:25]

But health is really a topic for me because I've struggled for so long.

[23:29]

And and I love to be at full potential.

[23:31]

And I know the difference between being at full potential and partial potential,

[23:35]

you know, that I'm interested.

[23:38]

And so I need to rely more on myself, on books, etc.

[23:41]

And I continue to sort of self-study.

[23:43]

And whenever I have a big question or a big problem,

[23:45]

I call her on WeChat and we have a long conversation.

[23:50]

And when I was in New Zealand, my friend comes and says,

[23:56]

oh, I've had this really confrontational conversation with dad.

[23:59]

I'm like, oh, what is it about?

[24:00]

She's like, I've had seven years of migraines.

[24:01]

And I'm like, oh, yeah.

[24:03]

You know, my sister used to have them.

[24:05]

Yeah, they can be very debilitating, plus also concerning.

[24:07]

And she goes, well, my dad is advocating that I have

[24:12]

injections in my brain for a lifetime.

[24:15]

And I'm like, what?

[24:16]

And she says, yeah, you know, it's like new treatment

[24:19]

where we do injections in your brain.

[24:20]

And I didn't know anything about anything.

[24:22]

And I said, well, that sounds not very appealing.

[24:25]

Like, you know, and she's like, yeah, I mean, I'm a bit concerned.

[24:28]

And I'm like, yes, I mean, completely.

[24:30]

Why wouldn't you?

[24:32]

I'm like, oh, I'm sure there must be another way there.

[24:34]

You know, what is the reason why you have migraines?

[24:36]

Let's just figure this out.

[24:37]

So I'm busy with work.

[24:39]

And through a combination of WhatsApp and WeChat,

[24:42]

I exchange with Dr. Zhang.

[24:43]

I read my books.

[24:45]

I ask her for a couple of questions.

[24:47]

Then I tell her what to eat.

[24:48]

And she eats them.

[24:49]

And as I see her again, she says, oh, yeah, by the way,

[24:52]

my migraines have gone.

[24:54]

It's so bizarre.

[24:55]

Like, so, so bizarre.

[24:56]

And I'm like, oh, yeah, I'm glad.

[24:58]

I'm so glad.

[24:58]

And I'm like, why did your father say that you need to take injections?

[25:02]

And she goes, because my father is a neurologist.

[25:04]

I really thought that it didn't make sense.

[25:08]

I'm like, well, he's a neurologist, clearly a really smart guy.

[25:12]

You know, based in the US, clearly very smart, very educated.

[25:15]

And clearly, he loves his daughter.

[25:17]

You know, I've seen the relationship and the admiration

[25:21]

and the love they have for each other.

[25:23]

Like, you know, then why?

[25:25]

And so that afternoon, I started to really dig up in my computer

[25:29]

because I thought probably that medication does,

[25:32]

you know, what I've given her as food or recommended her as foods.

[25:36]

And what I realized was that the medication was after silencing the pain.

[25:40]

They were what is correctly labeled painkillers.

[25:44]

What I was trying to do was not silence the pain,

[25:46]

was listen to the pain and try to find what the root cause of the pain is

[25:50]

and give her that.

[25:53]

And so I started to collect facts.

[25:55]

I started to understand that migraines were genetic,

[25:57]

that whereas 5% of boys and girls had migraines,

[26:00]

18% of women had them,

[26:02]

like the incidence would triple to quadruple at puberty.

[26:06]

I tried to find that there were all sorts of painkillers

[26:09]

through all sorts of mechanisms of action.

[26:11]

And when I was looking at the scientific papers like that,

[26:17]

the success rate wasn't so great versus other medications or other situations.

[26:23]

I could also find a few scientific papers with a few foods, for example,

[26:27]

dating back from 1985, which is, you know, from the family, same as chamomile.

[26:33]

And I thought, oh, interesting, because, you know, that's one ingredient I've used.

[26:38]

But I could see that in the scientific trials,

[26:40]

they were saying that it would work for some women,

[26:43]

for others, it would give diarrhea and problems.

[26:45]

And I could understand why.

[26:47]

And so then I went on Facebook and I like 18% of women.

[26:51]

Oh, my God.

[26:52]

And so I started to see all of this wall of women,

[26:55]

like these walls of pain.

[26:58]

And my eyes were so big.

[26:59]

It's a little bit like you discover, I don't know if you know what esports is.

[27:03]

I'm 40.

[27:04]

The first day I discovered esports, I was like, what?

[27:07]

What is this?

[27:08]

And millions of people watch this.

[27:11]

Oh, my God.

[27:12]

Or you might discover, I don't know, something else that sort of everyone knows,

[27:16]

but you're not aware of, like there's an entire world.

[27:19]

And so I discovered the world of migraines.

[27:22]

I was like, oh, my God, what is this?

[27:25]

And I could see all of these people in pain.

[27:27]

And I'm like, well, hold on.

[27:29]

If they're given pain killers and toxins in their system,

[27:34]

well, then no wonder they have more pain and rebound migraines.

[27:37]

And for many years, I had been wanting to do a food as medicine AI.

[27:43]

What I was after was to replicate my own experience.

[27:45]

What I was after was, oh, let's go into hospital for people

[27:48]

who lost blood and help them out.

[27:51]

And I was like, how does that work?

[27:52]

I'm not sure.

[27:54]

And so I hadn't given up on the idea.

[27:57]

But I thought, oh, I could really help these women.

[27:59]

Because clinical trials, if you do that, you just ask.

[28:07]

How you know that a woman doesn't have a migraine is you just ask.

[28:10]

So I thought, OK, 18% of women, I need to have friends.

[28:12]

And so I started to call back my friends and apologize, first of all,

[28:15]

for my lack of awareness and my lack of real empathy.

[28:20]

I said, you know, probably empathize in the moment.

[28:23]

But I empathize over what I knew.

[28:25]

What, you know, empathy is the ability to be able to relate to something.

[28:29]

So I empathized for headaches.

[28:31]

I didn't empathize for migraines, which now I knew I couldn't relate to.

[28:35]

And where this full body experience with so many symptoms that could last for days.

[28:40]

Anyway, it turns out they all still had migraines.

[28:42]

And I said, I think I found an idea.

[28:46]

Now, when I started, I was super naive.

[28:48]

Naive on the complexity on what I was getting myself into.

[28:52]

And I think that naivety was a complete gift

[28:56]

because I was naive enough that I thought I could have my sister and my friend.

[29:01]

And that had led me to be able to help them.

[29:05]

And and when I thought I could replicate that, that naivety led me into trying.

[29:11]

And I think that being naive in the first place is what helps me.

[29:17]

I had no idea, no idea how complex the system that I would need to develop would need to be.

[29:26]

Massively.

[29:27]

So I thought there would be three or four root causes for which women had migraines.

[29:30]

And I discovered so many more.

[29:33]

And and I would go unpaid.

[29:36]

I stopped working and I said to Dr. Dang, I've had a really deep thought.

[29:41]

And I think I'd like to do this.

[29:43]

I'd like to take a crack and see if with foods we can help people with their migraines.

[29:49]

And she says, look, I completely support you.

[29:51]

Anything you need, I'm here for you.

[29:54]

Let's do this.

[29:55]

And and so I started to do that unpaid.

[29:59]

Why I was not paying myself was because I, you know, couldn't make any promise.

[30:03]

I'm like, look, I think I can.

[30:05]

I have done it, but I'm not sure I can.

[30:08]

And, you know, I don't want to overpromise you.

[30:13]

I don't want you to pay me.

[30:15]

And so I said that to a couple of friends.

[30:17]

And so I started to have other people reach out to me that I had never met.

[30:21]

And I received these cases that were, oh, my God, lives I had never imagined even existed.

[30:29]

And so I was in front of people that would come to my place in Auckland, New Zealand.

[30:34]

I'm from Belgium originally and would tell me their life.

[30:39]

And I was trying to keep it together.

[30:41]

And I was thinking, oh, my God, what is this?

[30:48]

What is this life?

[30:49]

I mean, how do we let people live like this?

[30:53]

This is awful.

[30:54]

And I think this was really the birth of Migraine Heroes.

[30:57]

And I remember I remember the same day arrived to my place two different women,

[31:03]

one in the morning, one in the afternoon.

[31:05]

The first one, she had had 40 years of migraines, 40 years of antidepressants,

[31:09]

40 years of anti herpes medication.

[31:12]

She was taking six times a day, five days a week.

[31:17]

And she had done a hysterectomy in the hope to get rid of her migraines.

[31:21]

The second one, she had had she had had a concussion.

[31:27]

And after that concussion, she went from having recurring headaches

[31:30]

to debilitating migraines that would be constantly there for a year and a half

[31:36]

with the local insurer saying that the accident compensation saying,

[31:41]

look, you have to take antidepressants, medications and get back to work

[31:45]

because we have tried everything on you and now it's on you to go back to work.

[31:49]

And I remember calling Zhang and said, look, I don't know what this is.

[31:55]

Like, this is just like, oh, it's just a migraine.

[31:58]

Like, what do you mean?

[31:59]

It's like, yeah, well, this is what we're dealing with.

[32:02]

And so it was like, oh, my God, I said I could help with migraines.

[32:05]

I didn't say I could help with that.

[32:08]

That is beyond my imagination.

[32:11]

But one thing that was always true is that because I had felt things

[32:16]

that people had ignored for a long time, I was determined to never negate,

[32:23]

never tell them that they were feeling something that they weren't feeling in their body.

[32:27]

Yeah. And so that carried me a lot because initially I would ask them,

[32:32]

I had collated about 30 questions that I would ask them

[32:36]

in order to understand the systems routing their migraines.

[32:41]

And by listening to their stories and listening to the types of migraines

[32:45]

they were having, I added questions.

[32:48]

And then also I had the time paper tracker.

[32:51]

So I had put a system in place.

[32:52]

I had a great coach, JJ Casper, if you hear me, JJ, like, thank you so much.

[32:58]

And he said, don't raise money, try to bootstrap things

[33:03]

and try to do things very, very modestly.

[33:06]

And so I had a paper tracker, no technology.

[33:08]

And so I said, OK, here's your paper tracker.

[33:09]

You're going to record the things that you've eaten from your list

[33:12]

and also your migraines.

[33:14]

And so there was a little face and they could color the face with,

[33:21]

well, there was a little round and they could color the round with their paint.

[33:25]

So for me, red, green, yellow, like it was a traffic light.

[33:29]

And the second woman, she and the first one as well,

[33:33]

they drew an entire rainbow as a legend with like 10 different colors.

[33:39]

And then they color them differently every day.

[33:41]

And I remember the second one, as she was getting better,

[33:44]

I'm like, what did you mean with those colors?

[33:46]

She's like, oh, sometimes I experience pain here, sometimes there.

[33:49]

Sometimes I lose my vision, sometimes this, sometimes that.

[33:52]

And there was born the daily tracker

[33:53]

and how women experience migraines in a lot of different locations

[33:58]

and different times of the day and the cycle, etc.

[34:04]

And so I went on to do that for women,

[34:09]

sort of purely word of mouth.

[34:10]

I had no websites, no charging, no nothing.

[34:14]

I was just trying to see, can I really help women?

[34:18]

Did I get lucky the first two times or can I do this?

[34:22]

And I started to really be able to do that more, but sometimes I'd fail.

[34:27]

And so I was really close.

[34:28]

I would serve maybe five, 10 women parallel maximum.

[34:32]

And I would have all of them on WhatsApp.

[34:34]

They were all represented by flowers because I didn't want their last name.

[34:38]

And so they all had a flower in my phone and on a board that I had at home.

[34:43]

And so hence is born the name Nectar Health.

[34:46]

And so that they were represented by a flower for the identity.

[34:52]

And so I'd follow them.

[34:55]

And what I could see is some I'd go, I'd be done really, really fast.

[35:02]

And some would take me much longer time.

[35:06]

And some I'd fail.

[35:10]

Sometimes also it happened to me 10 times that I recommended a food,

[35:15]

just a simple food, the way you find in supermarkets.

[35:17]

But it would induce a migraine.

[35:19]

And I thought, oh, wow, why, why, why?

[35:21]

And by refining and refining and refining, you know, like I got to do things better.

[35:28]

Ask 97 questions, identify, you know, 14 locations and sensations in the brain.

[35:35]

You know, really develop an entire methodology to find the root cause

[35:39]

is an answer to it with, you know,

[35:41]

I realized that the order in which I was removing the layers of imbalances mattered.

[35:46]

And so I did that for a while, still unpaid for a while using no code technology.

[35:53]

So technology that were just forms.

[35:56]

So for a while, I just had a form for the daily tracker and nothing else,

[36:00]

except she's for the rest.

[36:01]

So things were ugly, but they were happy.

[36:04]

And I was making a difference in this woman's life.

[36:06]

I mean, I was completely transforming their lives completely.

[36:10]

And I think whereas initially the idea was,

[36:15]

oh, I really want to prove with a food as medicine AI to,

[36:19]

to that you can, you know, use food in order to, you know,

[36:25]

really reprogram a body and help it live well.

[36:28]

I certainly started to completely fall in compassionate love

[36:33]

with these women suffering and find an increasingly massive calling to say,

[36:38]

you know what, there's something going on here,

[36:41]

and it's not fair and it's not beautiful.

[36:43]

It's not pretty.

[36:44]

And it needs to change.

[36:47]

And when women would feel better and without migraines,

[36:52]

you know, and you can hear that through their own words

[36:55]

in the Migraine Heroes podcast,

[36:58]

they would have sort of two feelings coming with it,

[37:01]

an immense feeling of gratitude

[37:05]

and then an immense responsibility to help me carry that message forward.

[37:10]

And so some of them, depending on their abilities,

[37:13]

they would help me with stuff.

[37:14]

One woman in Singapore started to do all of my business plan.

[37:18]

Another one started to do all of my marketing.

[37:21]

Another one, you know, started to speak about me on social media.

[37:25]

A couple of other ones did, you know, like long form videos.

[37:30]

And I started to really feel the love and feel their willingness

[37:34]

in that community to contribute in their own ways

[37:37]

to tell others there is another way.

[37:40]

And that way, you know, is fantastic.

[37:44]

And I'll share with you all of my life in detail

[37:46]

so that you can, you know, benefit from that yourself.

[37:50]

And so little by little, I continued in no code

[37:53]

and I continued to really, really bootstrap.

[37:55]

I was bootstrapping because, you know,

[37:57]

you feel vulnerable with your migraines.

[37:59]

And I really hear you.

[38:01]

You feel vulnerable because you feel you've been used and abused

[38:04]

and that, you know, you've tried so many things

[38:09]

and they don't work and you have to pay so much

[38:11]

and it still doesn't work.

[38:14]

And I completely understand and embrace that.

[38:18]

And yeah, and so there was a massive willingness to help

[38:23]

and massive willingness to, yeah, change the status quo.

[38:28]

And so I bootstrapped because I too felt vulnerable,

[38:32]

but in a very different way.

[38:33]

I had invented something very small and very tangible

[38:36]

and very actionable that could help women

[38:39]

and I needed to protect it.

[38:42]

And when you raise VC money, and I have been a VC myself,

[38:47]

you need to, it's like you have 100 chicks on the starting line

[38:53]

and you're gonna feed the chicks that move on the fastest.

[38:56]

But at the end of the day, all you want,

[38:58]

all you need to do your job properly

[39:00]

is to have one chick that becomes a unicorn.

[39:03]

And so you're gonna, you might have to professionally

[39:06]

starve the other little chicks that are making progress,

[39:10]

starve them to feed the one that is running the fastest.

[39:13]

And I would not be running the fastest

[39:15]

because, you know, because of the cycle

[39:19]

that a person needs to go through

[39:20]

in order to feed the results I was after.

[39:22]

And some would go really, really fast

[39:24]

and some would go really, really slow.

[39:25]

And at that stage, I wasn't sure why it was happening.

[39:29]

Now I understand that a lot more.

[39:31]

So there's ethnicity, but also past medication.

[39:34]

So history of medication, current medication,

[39:39]

gastric juices and most likely genetics playing a role.

[39:45]

And so I went on to do that

[39:47]

and only last year I went full stack.

[39:49]

So that means I started to have my own app,

[39:51]

which, you know, implies a lot more costs.

[39:54]

But we were after having stuff like a Migraine Now button,

[39:58]

which is extremely exciting, but we couldn't.

[40:01]

Of course, there's no good tool

[40:02]

or off-the-shelf tools to develop that.

[40:05]

And so I started to do that full stack.

[40:10]

And I feel along that road, I had to make a huge effort.

[40:18]

So for me, along that road,

[40:19]

of course, every penny I was making

[40:21]

was going back into the system to make the system stronger, right?

[40:24]

So I was not paying myself.

[40:25]

And at no moment was this a desire

[40:34]

to have a successful career.

[40:36]

I had a very, very good career and very good work, right?

[40:41]

A very good income, you know, and, you know, very stable.

[40:47]

This is not what I was trying to do.

[40:49]

What I am trying to do is solve an issue.

[40:51]

And so it's a very, very different mindset.

[40:54]

But so every penny I would reinvest.

[40:57]

I think that's a big gift.

[40:59]

I think the bigger gift for me was I have this limiting belief

[41:03]

that in order to be living happy, you have to live hidden.

[41:06]

And so I had no social media accounts.

[41:09]

Or maybe when I had, I think, opened a Facebook account in 2000,

[41:13]

I want to say, eight or nine.

[41:16]

And then I had closed it the year after.

[41:18]

So I had to reopen that and, you know, do all of the social media thing.

[41:23]

For me, it was like a big, big effort.

[41:25]

I'm someone, you know, of the shadows.

[41:27]

And I don't like to be front and center of things.

[41:32]

But I thought, you know, here I'm going to have to be there for them and trust them.

[41:37]

And over through social media, I've met so many amazing women

[41:42]

that it made me appreciate it so much more because things are so unfiltered.

[41:47]

And I'm very grateful for the revolution that is going on

[41:50]

on women's health, on social media and podcasts.

[41:53]

Therefore, and I started to really appreciate.

[41:55]

But for me, it was quite a journey to get there emotionally and physically

[41:59]

and just, you know, action things.

[42:03]

And so at this stage, things are really proper and they're incredible.

[42:08]

And the result of the work that you see today

[42:10]

and the experience that women can have with very sleek app

[42:14]

and a sleek, I would qualify as a very sleek recovery

[42:18]

in terms of time and in terms of understanding and education.

[42:24]

And so in the app, for example, there's a chat

[42:26]

and there's me and another health practitioner in the chat

[42:30]

so we can follow people on a daily basis.

[42:32]

And we ask women not only just to not to know what we're doing,

[42:37]

but they can also feel it.

[42:39]

And it's a grand, you know, a lot of grand moments

[42:45]

when they're like, oh, my God, this is a win, this is a win.

[42:47]

We also have a community where women can exchange

[42:50]

and see that, yeah, we're actually doing it for other people too.

[42:53]

And then there's the Migraine Heroes podcast where women say,

[42:56]

you know what, I just I want to also explain,

[42:59]

you know, what happened to me and to my life

[43:01]

and how it was shaped by migraines and how, you know,

[43:06]

how I was taken out of it and how grateful I am today.

[43:09]

And I want to pass on the baton and my message to others.

[43:13]

And so, yeah, that's where we are today.

[43:17]

And look, I feel immensely grateful to my husband in particular.

[43:23]

I have an amazing husband.

[43:25]

Like, he does so much at home and works

[43:28]

and so sustains us financially and physically, you know, in many things.

[43:34]

And the reason why he says that is like, you know,

[43:37]

I do well and you do good and it's a balance.

[43:39]

It's a good example for the children.

[43:42]

And he sees the impact I have in women's lives.

[43:44]

And I think that keeps his fire going.

[43:47]

But I don't take it for granted.

[43:49]

And I'm immensely grateful that he allows me to do that.

[43:53]

My kids, you know, they celebrate.

[43:54]

We do vegetable cakes.

[43:57]

My daughter does that, like with really nice presentations,

[44:01]

you know, whenever there's a milestone that we want to celebrate.

[44:04]

And they're super involved.

[44:05]

They ask a lot of questions and they really care

[44:09]

because, you know, they have a mom

[44:10]

and they care that other moms can be there for their children.

[44:13]

Sometimes at the dinner table, I'll explain a story

[44:16]

or they see, you know, they could see in the past,

[44:19]

they could see the flowers moving on on the board of,

[44:22]

you know, women that were doing better

[44:23]

and they were, you know, really doing better

[44:26]

and then with no more migraines

[44:28]

and empowered to sustain the life like that.

[44:33]

Yeah, and so it's still today.

[44:34]

It's still me, still without investors.

[44:39]

And the reason for that is an investor, yes,

[44:41]

has the obligation to make more money.

[44:43]

And my sole obligation is to make women feel better.

[44:47]

And that's the only thing I'm trying to do.

[44:50]

And so as, you know, it's generating more revenues,

[44:54]

it's reinvesting into making things affordable.

[44:57]

I think affordability is an obsession for me.

[45:00]

You know, migraines doesn't have socioeconomic or, you know, whatever considerations that can touch anyone.

[45:09]

And so there's lots of single mums and single mums with, you know, jobs where they struggle.

[45:16]

And so my love goes to you and that quest of saying, OK, can I make things more systematic and more automated for these women

[45:26]

so that if they can't afford, quote unquote, to have me or Hélène by their side,

[45:32]

can they still be navigated and achieve the results that they're after?

[45:37]

Yeah, so if you look, sharing is caring.

[45:41]

If you like these episodes, share it with women.

[45:45]

Women feel incredibly vulnerable.

[45:48]

We also take care of children and men.

[45:52]

And I think it's only through these podcasts that they might see the light at the end of the tunnel.

[45:59]

Thank you for listening.

[46:02]

Remember, sharing is caring.

[46:05]

Share your story with me.

[46:07]

Take my free test and let's connect to help you gain a deeper understanding of your migraine profile.

[46:14]

Learn about the underlying imbalances that could be contributing to your genetic predisposition for migraines.

[46:21]

Join our community of migraine heroes.

[46:24]

All the links in the description below.

Originally published December 2023

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